My friend Peggy Mason, a neurobiologist colleague here at Chicago, received the NIH’s email below, which was sent around to many people who get NIH announcements. This announcement is soliciting people to review grants on autism, and it has some pretty strange bits. I thought I’d let readers see it and give their take. At the end I have a list of questions that struck me as I read it.
Peggy had no problem with me using her name, as she was also puzzled by the announcement. It’s indented below. Bolding is both mine and the NIH’s; I’ve indicated which is which.
From: Ascanio Carrera, Emilia (NIH/OD) [C] <emilia.ascaniocarrera@nih.gov>
Sent: Monday, June 30, 2025 9:28 AM
To: Ascanio Carrera, Emilia (NIH/OD) [C] <emilia.ascaniocarrera@nih.gov>
Cc: Faulk, Kristina (NIH/OD) [E] <kristina.faulk@nih.gov>; Kellton, Karen (NIH/OD) [E] <karen.kellton@nih.gov>
Subject: The NIH Autism Data Science Initiative (ADSI) Review Recruitment
Hello,
The NIH Autism Data Science Initiative (ADSI) is seeking reviewers with scientific expertise, including those with lived experience, to review applications to be selected for funding under the Autism Data Science Initiative (OTA-25-006) research opportunity announcement.
The Autism Data Science Initiative’s goals are to explore novel contributors to autism, improve our understanding of mechanisms of co-occurring conditions to target in future clinical trials, and enhance our ability to deploy effective and scalable interventions and services across the lifespan through identification of effective components of care.
The application deadline is Friday, June 27th, and we are now looking for reviewers with scientific expertise in the following areas:
- Community engaged research methods and/or lived experience
- Data science, bioinformatics, and/or Multi-omics integration
- Expertise with Electronic Health Records and Claims data and research methods
- Autism etiology (e.g., genetics, cellular/molecular mechanisms)
- Clinical diagnosis of autism, phenotyping, and diagnostic ascertainment procedures
- Co-occurring conditions and health outcomes in autism across the lifespan, including mental health, quality of life, educational and employment outcomes
- Autism interventions and services, including clinical trial methodology (i.e., efficacy, effectiveness, hybrid-type trials), dissemination and implementation research
- Toxicology and/or Epidemiology (e.g., environmental, maternal and child health)
- Proteomics, Metabolomics and/or Epigenomics (e.g., methylation, transcriptomics)
- Reproducibility and/or validation design and research
Please note that reviewers should have sufficient work experience and/or education in their area(s) of expertise. Early career investigator are welcome and encouraged to participate as a reviewer.
JAC: All bolding above is mine, while all bolding below is the NIH’s:
Reviewers will complete a required conflict of interest process prior to being assigned applications to review. We plan to assign these applications by Wednesday, July 9th and will offer a Webinar with explicit instructions on the Objective Review process. Written Objective Review evaluations will be due on Wednesday, July 23rd. Each reviewer will be assigned no more than 5 applications to review. If you are interested in reviewing but have time constraints during the July 9-July 23 review process, please comment on this within the webform (see hyperlink below). All review materials will be accessed via MS Teams or NIH Box.
If you are willing to serve as a reviewer, please complete the Reviewer Intake webform by June 30th. Please note, your information will not be publicly available and will only be shared with the immediate ADSI team. If you are not able to participate, then please respond using “reply all” so that we know to remove you from future correspondence seeking reviewers.
Please feel free to forward this email to anyone meeting the above scientific expertise qualifications that you think may be interested. Please contact Kristina Faulk (adsi-review@mail.nih.gov) if you have any questions or concerns.
Please note, there is a reviewer orientation video that will be made available on Tuesday, July 1st, 2025. If you volunteer, we will confirm receipt of your email and include a link to the reviewer orientation video.
Sincerely,
The ADSI Working Group
What is weird about this announcement includes the following:
1.) It invites people to nominate themselves to review grants (on autism)
2.) “Lived experience”, a phase often encountered in woke prose, can qualify you to be a reviewer.
3.) You do not necessarily have to possess an academic degree in the field to qualify as a reviewer. I’m not sure whether this invitation thus includes people who worked with autistic people, high-functioning autistic people themselves, parents of autistics, or anybody connected with the condition. This is the first time in my career that I have seen not only people asked to nominate themselves as reviewers of several grants on a subject, but also the apparent substitution of work experience (which would be “lived experience”) for of academic work or degrees (“education” does count, though). Is this type of self-nomination, particularly without academic qualifications, also used by other organizations that hand out grants?
4.) It struck me that although the “lived experience” thing seems woke, the whole solicitation might be a way to get autism activists onto NIH panels, which is something that Robert F. Kennedy Jr., the new United States Secretary of Health and Human Services, might want. As we know, RFK, Jr. has promoted the idea (rejected by most experts) that there is a connection between vaccines and autism, with one culprit being the mercury compound thimerosal. There are a lot of people who go along with this theory, and perhaps RFK, Jr. wants them to review (and perhaps fund) grants that could buttress the theory.
The last question is just speculation and a hypothesis that prompted Peggy to send me this solicitation. It certainly is outside the parameters of normal reviewing, what with the calls for reviewers, the us of “lived experience” as a qualification, the process of self-nomination, and the apparent lack of need for an academic degree in a field to review proposals in that field. I did genetics reviews for the NIH (all evolutionary genetics, my field), and I don’t remember any panels containing people with just “lived experience” in that field. But of course autism is a biomedical field very different from evolutionary genetics.
At any rate, both Peggy and I would appreciate readers weighing in on this. Is this a very abnormal way to get reviewers? And do you think this is a tactic to further RFK Jr.’s autism ideas? As an April article from the BBC reports, RFK, Jr. is on the fast track to find the cause of autism, a goal which seems bizarrely rushed:
US Health Secretary Robert F Kennedy Jr has pledged “a massive testing and research effort” to determine the cause of autism in five months.
Experts cautioned that finding the causes of autism spectrum disorder – a complex syndrome that has been studied for decades – will not be straightforward, and called the effort misguided and unrealistic.
Kennedy, who has promoted debunked theories suggesting autism is linked to vaccines, said during a cabinet meeting on Thursday that a US research effort will “involve hundreds of scientists from around the world.”
“By September, we will know what has caused the autism epidemic and we’ll be able to eliminate those exposures,” Kennedy said.











